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Latest posts
Last updated 5 days ago
Helping families and clinicians connect the signs that may point to TK2d
5 days ago
A diagnosis often begins with subtle signs that something is not quite...
When words are not enough: Expressing Epilepsy through Art
6 days ago
There’s a moment that happens in conversations about living with epilepsy. Someone...
Advancing the future of rare disease diagnosis: Aspire4Rare's next chapter
10 days ago
There are moments in this work that stay with you. Sitting across...
Addressing care gaps across the patient journey: insights from the 2026 UCB Startup Program Pitch Day
about 1 month ago
For people living with chronic conditions and rare diseases, better outcomes depend...
Delivering today, shaping what comes next
about 1 month ago
When I look at where we are halfway through 2026, I feel...
Seeing beyond the surface: understanding the impact of ocular symptoms in myasthenia gravis
2 months ago
When referring to myasthenia gravis (MG), there is normally a generic reference...
FASTRAX working session highlights progress in axSpA diagnosis
2 months ago
A collaborative working session in London compares country-specific approaches to reducing diagnostic...
Changing the Way We Care for gMG: Why Patient Choice and Innovation Must Lead the Way
2 months ago
From attending this year’s European Academy of Neurology (EAN) Congress in Geneva...
Reflections from EULAR 2026: advancing early control of inflammation
3 months ago
A moment to reflect and move forwardAfter a busy few days at...
The hidden impact of Thymidine Kinase 2 Deficiency
3 months ago
When we speak with families living with thymidine kinase 2 deficiency (TK2d)...
Revolutionize Science. Redefine Care. Restore Humanity: One year of progress since the first UCB HS Vision Report
3 months ago
One year ago, we shared the first UCB Vision Report, making a...
Celebrating a decade of partnership advancing digital innovation in epilepsy care
4 months ago
Bridging the gap between epilepsy care and everyday lifeNearly 10 years ago...